The costs of chronic illness and disability are many, and coupled with the overall lower income and higher unemployment rates of the people who fall into these categories, they take a huge toll on many lives. Some of them are more well-known, such as the high cost of a specialist appointment or surgery. However, there…
It’s the Most Flare Inducing Time of the Year! (Coping With the Physical Strain of the Holiday Season)
The holidays can be a challenging time of the year, especially if you live with a disability. In the November newsletter, I asked you what the most helpful thing would be for us to discuss in the lead up the Christmas. The most popular answer was: coping with the physical strain of the holidays. My…
Transdermal CBD Patches: Dream Come True or Too Good to Be True?
For the past year I have been using CBD products to help with pain, nausea and muscle spasms. I have found it to be an incredibly helpful tool as part of a multi-prong approach to managing several chronic conditions including Hypermobility Spectrum Disorder, Fibromyalgia, and pelvic pain. I have primarily been using sub-lingual oils and…
A Cautionary Tanka and Other Poetic Thoughts
(AKA a short selection of my grievances, organised by syllable.) A Tanka is a form of short poetry that originated in Japan and is often likened to an extended Haiku (a three line poem with a syllable pattern of 5,7,5). When it comes to life with chronic illness, we often experience both beautiful and devastating…
A Comprehensive Review of the CycleSoother
Content Warning: descriptions of medical symptoms, blood. ATTENTION Do you have a uterus? Do you sometimes wish that you didn’t!? Well then, this is the article for you my friend! (If you do NOT have a uterus, I suggest you pause for a small moment of gratitude, then keep reading anyway so you can potentially…
Freedom
Freedom Walking’s never something that I thought that I would lack,I’m sick of spending so much time just flat upon my back. Freedom comes in many forms, can’t always choose our own.These limbs are unreliable, so I’ll be rolling home. Freedom comes in many forms, and sometimes it’s a choice,Today I chose to hop on…
The F Word
Content warning: suicidal ideation, medical negligence, medical gaslighting, trauma, grief, depression, depictions of medical symptoms. Please note: This post will make reference to the pros and cons of certain treatments for Fibromyalgia. However, this is not medical advice. Please speak to your doctor. Why do so many of us refer to Fibromyalgia as "The F…
PMDD – The Insatiable Monster That Won’t Stop Chasing Me
Content warning: suicidal ideation, self-harm, violence, dissociative episodes, intrusive thoughts, trauma. Please note: In today’s post I will be sharing my personal experience with Pre-Menstrual Dysphoric Disorder or PMDD. Part of me has been dreading sharing the details of some of my pre-treatment thoughts and behaviours, but I believe it is important to talk about…
The ER Veteran’s Guide to an “Efficient Emergency”
I have been to the emergency room more times than I can count. Appendicitis, abdominal tear, fainting, partial paralysis, abnormal migraine, undetectable cortisol levels, multiple bouts of anaphylaxis, and that time my eye swelled closed for no apparent reason. There has been a recent uptick in these visits for me over the past year (hurray!)…
What It’s Really Like to Be in “Full-Time” Rehabilitation
I am sick. To a certain extent, I have always been sick, but over the past 3 years my health has detiorated considerably. I went from balancing work, study, training for my first 12km run and learning German in my spare time, to bed bound and unable to make my own breakfast. This was (obviously)…