I Spent My Saturday Translating This Life-Changing Article About EDS and MCAS Into English

My doctor recently handed me a copy of a journal article on the relationship between Ehlers-Danlos’ Syndrome and Mast Cell Activation Syndrome. It was co-written by Dr Stéphane Daens and Dr Daniel Grossin; the President and Vice-President of GERSED (Belgium’s Francophone society for EDS research). I am actually eagerly awaiting an appointment with Doctor Daens in…

Freedom

Freedom Walking’s never something that I thought that I would lack,I’m sick of spending so much time just flat upon my back. Freedom comes in many forms, can’t always choose our own.These limbs are unreliable, so I’ll be rolling home. Freedom comes in many forms, and sometimes it’s a choice,Today I chose to hop on…

The F Word

Content warning: suicidal ideation, medical negligence, medical gaslighting, trauma, grief, depression, depictions of medical symptoms. Please note: This post will make reference to the pros and cons of certain treatments for Fibromyalgia. However, this is not medical advice. Please speak to your doctor. Why do so many of us refer to Fibromyalgia as "The F…

PMDD – The Insatiable Monster That Won’t Stop Chasing Me

Content warning: suicidal ideation, self-harm, violence, dissociative episodes, intrusive thoughts, trauma. Please note: In today’s post I will be sharing my personal experience with Pre-Menstrual Dysphoric Disorder or PMDD. Part of me has been dreading sharing the details of some of my pre-treatment thoughts and behaviours, but I believe it is important to talk about…