Fullabilities: The Fearless Disability Advocacy Project Run Entirely by High School Students

CW: descriptions of medical symptoms, fainting, medical gaslighting. Today's blog post is an interview with Hanna Pacula, one of the founding members of Fullabilities; a disability advocacy program run by disabled and chronically ill students from Poland. Hanna has an incredible story. She has been bed-bound and unable to achieve a seated position without fainting…

I Spent My Saturday Translating This Life-Changing Article About EDS and MCAS Into English

My doctor recently handed me a copy of a journal article on the relationship between Ehlers-Danlos’ Syndrome and Mast Cell Activation Syndrome. It was co-written by Dr Stéphane Daens and Dr Daniel Grossin; the President and Vice-President of GERSED (Belgium’s Francophone society for EDS research). I am actually eagerly awaiting an appointment with Doctor Daens in…